Documenting LIfe with Hyperemesis Gravidarum
Being a voice for HG on an International level.
Shower Prep with a PICC Line
My story of dealing with an OB I thought I could trust, and that at one time i held in high esteem, only to discover that her ego was bigger than her heart. She treated me as though I was just a lazy person that wanted to be sick, and that I just needed to try harder. She's the one that pulled my first PICC line out, and it only got worse from there. Eventually I was switched to another OB after she dropped me as a patient.
Here's some Facebook posts that I shared along the way:
October 3, 2019 ( I was so stressed between Sept 17 through this day about how I would get fluids. I started looking for other OBs that might be able to help me get fluids, because my OB wasn't going to help me with it at that point)
"I'm sooooo happy! I found another ob dr that will work as part of my care team and administer fluids and vitamins. I can get a Meyers cocktail. I can go 2x a week and not have to switch providers. She was so great to meet. We did hear a concerning arrhythmia in baby's heart though. So need to look into that. We finish the anatomy scan next week, so we'll have more answers then. I'm just so happy to start getting fluids regularly again. I can't wait to feel better and have vitamins. It's such a weight lifted. Plus not having to choose between providers is a huge anxiety laden decision I won't have to make."
This didn't last long though. The nurses at the functional medicine practice struggle a lot to get IVs started in me, and my veins would collapse and blow. Plus, they ended up only giving me 16 oz at my visit and it would take 3 hours to get 16oz of fluid. It wasn't helpful, so I just went back to Quick Care.
November 18, 2019 Facebook post:
"So long story short...
My previous OB went out of her way to sabotage my treatment, again!🤬
If you're following my updates you know I have a different OB now. She, my new ob, had my picc line put back in last Monday.
So my previous OB still being hell bent on things being her way or the highway decided to call and report my new ob to MFM today when she found out I had an appointment today. MFM promptly told my new ob that my picc has to come out. She's fighting them on it.
There's more drama than this. But that's the main thing that happened today. I asked my previous ob to give me a moment to chat with her and set things right, because I hate this drama, and tbh and blunt, she's being abusive. She of course refused to talk with me. Serious ego problems and immaturity on her part. I'm so pissed with her and so is my new OB.
That's the short of it though today.
To boot, I have bronchitis and a sinus infection on top of HG. My picc line has a lump that needs to get checked tomorrow and needs to be readjusted since it's "tickling " my heart potentially. Otherwise I think it's ok. I'm getting fluids at home regularly the last week, which is nice, so I'm praying that all is good with my picc.
Ffs, can it just be February already? And can the majority of drs that have a god complex please be made to take some emotional intelligence courses?"
*Nevermind the countdown at the beginning, I was voice recording at the same time as I've been working on content for a documentary.
Difference Between Pregnancies
My personal experience with 3 pregnancies. One is totally normal, and the other two surviving with Hyperemesis Gravidarum. Nevermind the countdown at the beginning, I was voice recording at the same time as I've been working on content for a documentary.
Effects of Hyperemesis Gravidarum on Kids
What will be the effects on my kids born from pregnancies fighting Hyperemesis Gravidarum?
Medications for Hyperemesis Gravidarum
Medications, side effects, and concerns with Hyperemesis Gravidarum.
IV Bruising and PICC Line
This shows some of the major bruising I experienced after having so many IVs for weeks between PICC Lines. Then a couple close up shots of my PICC line and the damage to my skin that comes from having adhesives on to protects the PICC line.
Breastfeeding with a PICC Line
I had planned to fully wean my toddler by the time she turned 3. However, I was incredibly ill at the time she turned 3, and I didn't have it in me to commit to fully weaning, so I reduced her feeding to once a day, and many days she doesn't even nurse now. So many times I've been too sick for her to sit on my lap, to cuddle her, and to especially nurse her. She has been super sweet and gentle knowing mom doesn't feel well and is sick. Once in awhile she just absolutely needs mommy to hold her and nurse her. It's hard being so sick and feeling easily overstimulated, overwhelmed, so it becomes easy to be touched out and not want anyone touching me.
photos taken late Nov. 2019
IV Infusions at the Quick Care
A cell phone pic of me October 8, 2019 at the Quick Care getting fluids. I was working on crocheting a baby blanket to help pass the time and take my mind off being sick and sitting there for hours.
Last ER Trip for Fluids
September 27, 2019 was my last trip the ER for fluids. I had been on my first PICC line for 10 days, had lost about 9 lbs, was severely dehydrated, and constantly puking. After this my OB decided to get on board with allowing me to go to Quick Care for fluid 2x a week.
However it wouldn't be my last ER visit for the pregnancy.
Since then I ended up back there the night before Thanksgiving because my 2nd PICC line was bleeding a lot, aching, lumpy, and I needed to have an ultrasound. No clots found, but it proved to not be working well. It was causing problems with my heart, and was forcing itself out of my arm, so I needed a replacement PICC, a 3rd PICC line. I just don't have photos from that night. The 3rd PICC line went in Dec 6, after an X-Ray on December 5 showed that it was coming out of my arm too much. The catheter would totally jsut keep sliding out everytime I had a dressing change, and was constantly achy.
Here's the Facebook post I made though to go with the photo below:
Thanks for never turning down a sick pregnant woman that desperately needs fluids. Tonight there is a caring crew that gets it or at least is sensitive enough to understand what I need.
My dr keeps turning me down for fluids. I'm losing weight, not holding food or fluids down. Dr says try harder. Dr says I must be fine since my labs look normal.
Tell that to my raw throat, dry lips, hungry belly, thirst I can bever quench, and massive fatigue.
Tell my dentist I'm normal when he saw how bad my teeth are getting from puking up acid and bile.
Tell that to my nurses that have blown vein after vein because I'm dehydrated.
Tell that to my ER doc tonight that had to use ultrasound to find a good vein, because I'm too dry and blew the vein in my hand.
No one wants to be in the ER, but I'm so thankful we have decent insurance and ER won't turn me away. I'm thankful tonight that I get fluid.
I'm thankful tonight that I got to chat with a caring nurse about hg and share what I know with her because she doesn't quite know what it is and how it effects women with it.
Not all pregnancies are beautiful goddesses walking through flowery fields looking peaceful. Not all pregnancies are magical like social media wants women to buy into. Pregnancy is a lot of work even in a average, normal, healthy low risk pregnancy. With HG the reality is that it sucks. It's taboo to share the negative and difficult side of pregnancy, but taboo can kiss my ass. I won't sugarcoat this, and I also will fight through it till the end. At least there's an end in sight, aside from the trauma of it.
I will speak up about HG because it needs awareness. I never want pity. I want people to just understand that even though there's a small little percentage of us that fight this, we're fighting every day for ourselves and our babies.
December 6, 2019 Facebook post:
" On my way to the hospital for another picc line (3rd one). The 2nd one that's currently in since Nov 11th has been having problems, so have to go through another procedure. Totally sucks and the days after are so achy. It gives me lots of anxiety going through this. Fingers crossed all goes well this time. Gawwwd, not much longer to go in this pregnancy, but feeling like eternity at the moment."
Not Having a Good Time
October 18, 2019 Facebook post:
"Just spent 6hrs in the L and D triage for fluids. My veins are wrecked from all the IVs. Awesome nurses and dr though. It sucks goin through this, but it's really wonderful when nurses and drs are good at what they do, have fantastic bedside manner, and ate genuinely caring. A friend of mine tagged me in this while I was at the hospital (she didn't know I was there), and I couldn't help but laugh. Some days are hard, but you gotta have a sense of humor and lightness. At the end of all the hours trying to get IVs in, ready to go home, Clara got her finger stuck in a little metal hole on the back of the bed just as the nurse was taking out my iv. Couldn't get it out, but finally came loose with lubes. It's just crazy life sometimes. Shit happens, but we come out of it alive, hopefully with a good story, wisdom, and a sense of humor. Not all days are met with a sense of lightness amongst the chaos, some are just met with tears, but at the end of the day, for anyone goin through something tough, I hope you have a nice warm bed to crawl into and even better if you can crawl under the covers with someone you love. I know I'm looking forward to my bed tonight. Time to have soup and get cozy."
Another Trip to L and D
October 25, 2019 Facebook post:
"I made a hat this morning!😀 Photo outside the Meridian hospital. Clara had a hearing test that we need to get more clarification on if she's having trouble or not. Then it was off to iv fluids for me at another hospital from where we are now. So glad this munchkin is such great company for these hospital days."
An Article about HG and Its History
November 8, 2019 Facebook Post:
"Tearing up reading this as I sit in triage waiting for an IV. I've read so much on hg, trying to understand it, to find ways to help myself, and so thankful for the couple online support groups. I shared my story and post updates in hopes to bring awareness to the illness.
It's terribly sad and infuriating how women, including myself, have been mistreated, or in better terms, not treated just as equally. And sometimes it's just luck that you get a caring and knowledgeable midwife or OB and I've experienced both sides. It makes me even more thankful for the people that have been there for me, because I know what it's like to stand up for myself to people and providers in disbelief.
I really can't say it enough, this illness doesn't have enough information, support, and awareness. If you're having babies or know someone that is and they're suffering, you know now from knowing me, help them, support them, and advocate for them when they can't. If I can drill it in to a couple people even to spread awareness about hyperemesis gravidarum then that'd be fantastic. What a woman endures through a pregnancy with hg is utterly awful. I just want the suffering to stop for myself and those that have it. I want drs to understand it, and know how to help their patients, and I want all women with it to feel supported and cared for.
I wish I could have a magic wand to wave over all of us that have it, have had it, and will have it, and to wave over the medical and research field."
Article Title: My Extreme Form of Morning Sickness Was Terrible. Not Being Believed by My Doctors Was Worse.Hyperemesis gravidarum is dangerous, and treatable. Why does the medical community still ignore it?
Second PICC Line
Nov. 11, 2019 Facebook post:
"Picc line is in. My arm is achin , and tomorrow and Wednesday will be the worst of it, but within a week, if all goes like last time, not only will my arm be feeling better, but I'll be hydrated and feeling better overall. I'm scared to have a picc again, but so thankful too. Looking forward to not having to go to the hospital 2x a week and no more getting poked with numerous IVs. Back on home health care."